The girl with a will to live: the love, hope and pain of raising Elsie – my one in 163 million daughter

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The Guardian

The girl with a will to live: the love, hope and pain of raising Elsie – my one in 163 million daughter

She was born with an ultra-rare genetic disorder. After my decades working in film PR, I now face the biggest campaign of all: the fight for her life My daughter Elsie has beautiful curls – blond like a little Botticelli cherub’s, hair that someone dark like me could only ever dream of. She laughs a lot, has a cheeky sense of humour and soaks in all the sounds around her – rustling leaves, the sea, a dog barking, chi…